Fighting Spinal Muscular Atrophy as a Family

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by Wendy Henderson |

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A spinal muscular atrophy (SMA) diagnosis is an incredible blow to families, as their child is often just a few months old and the prognosis they are given is usually bleak. However, the strength and determination of families in the face of such adversity is truly amazing and there is a strong network of support for them to tap into.

Meet two families who are coping with SMA.

In this 2015 WXYZ-TV Detroit video, reporter Stephen Clark is raising the profile of the disease for his granddaughter Scarlet, who has type 2 SMA. Clark speaks to pediatric neurologist Dr. Harold Finkle about future treatments and ongoing clinical trials in the hope that one day a cure will be found.

SMA families talk about their hopes for the future. Find out more.

SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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