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Fighting Spinal Muscular Atrophy as a Family


A spinal muscular atrophy (SMA) diagnosis is an incredible blow to families, as their child is often just a few months old and the prognosis they are given is usually bleak. However, the strength and determination of families in the face of such adversity is truly amazing and there is a strong network of support for them to tap into.

Meet two families who are coping with SMA.

In this 2015 WXYZ-TV Detroit video, reporter Stephen Clark is raising the profile of the disease for his granddaughter Scarlet, who has type 2 SMA. Clark speaks to pediatric neurologist Dr. Harold Finkle about future treatments and ongoing clinical trials in the hope that one day a cure will be found.

SMA families talk about their hopes for the future. Find out more.

SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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  1. Delores says:

    My granddaughter had SMA 0 to 1 the approval came to late for her but she survived 5 weeks when she should have never made it at birth keep searching for a SMA cure with hopes that women can be tested early in pregnancy to prevent such devastation in a child and there families I cry every day for the loss of my granddaughter Alayna I will fight for a cure

    • Tim Bossie says:

      I am truly sorry for your loss Delores. We can only hope that one day soon this, and other diseases, will be cured.

  2. Hesham talaat owais says:

    Hi,is there any hope to get help to my 11 y.o Egyptian daughter SMA Type 2 .
    I can’t afford spinraza, i wish i can stop checking her chest moving every morning before i wake her up. Did she made it to another day?

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