What an SMA Patient Really Needs

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by Wendy Henderson |

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In this Muscular Dystrophy UK video, Dr. Ros Quinlivan from the Queen’s Square Centre for Neuromuscular Diseases in England explains the different types of spinal muscular atrophy (SMA) and the special needs that those with the disease will require throughout life.

Read how a British charity is helping children with disabilities such as SMA become gamers.

In addition, Marion Main, a senior physiotherapist from London’s Great Ormond Street, discusses how important physiotherapy is for children who have SMA. James Lee, a 28-year-old Londoner who has type 3 SMA, shares how his daily life is affected by the condition and more about the ‘alert card’ that he carries with him to explain his condition to medical professionals in an emergency.

Read five frequently asked questions about spinal muscular atrophy here.

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