SMA Stories: Meeting Captain Jack
In this emotional video shared by Sazan Hendrix, a group of old college friends decide to pay a visit to a friend and her son Jack.
Jack is 13 months old and has spinal muscular atrophy (SMA). His mom Kristen explains some of the treatment Jack needs on a daily basis and describes how her life has changed since becoming Jack’s sole caregiver. The group is hoping the video raises awareness for the disease, which despite being the number one genetic cause of death for babies and infants, many people have never heard of.
Sazan usually vlogs about beauty and traveling with her husband, Stevie, so this is a quite a change for her.
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