Defying Monotony in Life With SMA

“Hello, Peter. What’s happening? Umm, I’m gonna need you to go ahead and come in tomorrow. So, if you could be here around 9 that would be great. Mmkay? Oh, oh, and I almost forgot, ahh, I’m also gonna need you to go ahead and come in on Sunday, too,…

A Year Later, I’m Still Wearing Old Shoes

Last January, I wrote about shoes. At the time, I was gearing up to get a new wheelchair. Those who are familiar with wheelchairs will recognize this process for what it is: absolute agony. From seating to driving to minuscule issues that you can’t pinpoint for the life of…