Ella and Her Brother Learn a Lesson

The world is holding its collective breath as COVID-19 makes its way across the globe. My daughter Ella has SMA. Her respiratory system is particularly fragile and compromised due to her disease. A simple cold can wreak havoc on her, landing her in the hospital…

Ella Thrives as She Celebrates Her 9th Birthday

Our house is filled with music and song. Ella turned 9 on Monday. In light of her joining the Young Naperville Singers, we decided to get her a karaoke machine. She was delighted at the prospect of hearing her voice through the speakers. We downloaded an app to go…