Education Is Essential to Success of SMA Carrier Screening Programs, U.K. Study Finds

Families living with spinal muscular atrophy (SMA), like most people, favor screening for genetic disorders. Yet those who lack experience with SMA generally take a far more negative view of the disease. That’s according to a new study, “The role of experiential knowledge within attitudes towards genetic carrier screening: A…

SMA: Scarlet’s Life

In this WXYZ-TV Detroit video shared in March 2015, meet Scarlet and her loving family. Scarlet is a typical 2 1/2-year-old girl in many ways —  bright, funny, and very talkative — but she has spinal muscular atrophy. Meet the Kingsley family and 6-year-old Brett who was diagnosed with…