It’s a normal day. Well, mostly a normal day. My parents come into my room at about 4 a.m. to tell my sister and I that they love us and that they’re heading out. They have a three-hour drive to the airport, and then an hour flight. Their first flight.
The Mermaid Chronic(les)
— Kala Godin
Kala is a 22-year-old woman living in Alberta, Canada. She was diagnosed with SMA Type II at 11 months old. She is a columnist, author, and editor. In her weekly column, “The Mermaid Chronic(les),” she discusses life with SMA: from her daily life to the expectation of others. No matter the topic, she tries to keep things silly and sarcastic.
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Let’s talk about New Year’s resolutions. For the most part, I already live the way I want to and don’t feel the need to set any new goals, so I end up with the same “resolutions” every year: Try to not get pneumonia: This is…
My parents recently went on a trip and left me to fend for myself. I’m kidding. My sister was with me. We’re perfectly capable of fending for ourselves and survived purely on junk food, takeout, sugar — and caffeine. (Just kidding, Mom.) My parents need to travel on their own…
Three days from now, on Aug. 23, I will be doing my first book signing. As I previously have mentioned, my first book, “Witchcraft and Monsters,” was published in January. I now have this amazing opportunity to see what a book signing is like. My…
We have a number of pets, including a small, aging Chihuahua and a few cats. They’re adorable and we love them a lot. The cats follow my younger sister around pretty much wherever she goes, including the bathroom, or they meow and yell on…
I previously wrote a column about body modifications and how my favorite kind is tattoos. When I think about it, I’ve been in to get tattooed every year since graduating high school. Well, every year except for this one — so far. There’s still time. On…
We see a lot of articles addressing SMA and dating, or dating when an individual is in a wheelchair. I’ve had little to no experience in dating. I had a boyfriend when I was in middle school, but that was more of a “Well, everyone…
We’ve finally had some decent weather. It has been rainy lately, which I thoroughly enjoy because I’m allergic (literally, not figuratively) to the burning orb in the sky that is the sun — both my skin and eyes react. But construction doesn’t happen when it’s raining, which…
It is July, the seventh month of 2019, and I am ready for this entire year to be done. I’m not joking. Something drastic and stressful has happened every month so far. Not with me — I’m fine — but I’ve had multiple family members become sick, and…
It’s summertime, and that means holidays, road trips, camping, and hotels. Also, sunburns, mosquitoes, and probably dehydration. I’m kidding about the dehydration. My mom makes sure that I drink more water than she does. I’m mostly content to be in the house with the blessed air…
I have to start preparing for the plastic apocalypse. Yes, I may just have to start hoarding plastic bendy straws and forks. And also hopefully never get caught with them. (She says to the entire internet.) Or ever run out. I get it: We want to be eco-friendly. Save the…
My life is full of medical appointments, and they all tend to be fairly inconvenient. Necessary, but inconvenient. I can’t attend them on my own because, well, I can’t drive or take care of myself. So, my mom ends up having to take a day off work…
SMA comes with a lot of challenges. The progression of the disease is the worst — at least, in my experience. About a year to 18 months ago, I finally had to accept the fact that I just couldn’t drive my electric chair anymore. Honestly, I probably shouldn’t have…
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