This video from CTV News features the Bartlett family from Ontario, Canada. Sarah and Myles Bartlett are understandably excited about Spinraza and the potential the new drug has to treat their daughter Stella, who was born with spinal muscular atrophy (SMA). However, they’re still waiting for the drug to approved by the Canadian government.
As well as waiting for approval, the SMA community in Canada is concerned about the high price tag attached to the drug. Currently, the price of the first injection is US$750,000, with annual injections for the rest of their children’s lives costing US$375,000 each year.
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