Leaving the home when you have children with SMA can be challenging. There are many factors to take into consideration to ensure the comfort and safety of your child.
Dany is a mom who understands this all too well. She shares some of the things she needs to think about before leaving the house on TogetherinSMA. Practical issues such as supportive chairs and wheelchair access need to be taken into account, but also other issues such as whether her children will actually enjoy the event.
She suggests checking out locations beforehand, using Internet review sites to establish whether a restaurant or amusement park is accessible and if venues have special accommodations they can extend to you. Dany advises taking a few items from home to keep children occupied and amused (which has helped her on numerous occasions) — pens, pencils, and bubble blowers have proved their weight in gold. She shows that you don’t need to be confined to the house and that with a little forethought and planning, the whole family can enjoy a day out.
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.