Alexander Davis is a nine-year-old boy from Tipton, Indiana who is embarking on a new journey in his treatment for spinal muscular atrophy (SMA). Alexander was diagnosed with SMA type 2 at the age of one and has just received his first injection of the newly FDA-approved drug, Spinraza (nusinersen).
According to a report on fox59.com, his parents, Anastasia and Sean, were told by doctors that Alexander would never be able to walk and that there were no treatments available to alter the course of his disease. The approval of Spinraza offers the Davis family and hundreds of other families real hope that progress can be made and that their children’s condition can be improved.
You can track Alexander’s progress with Spinraza treatment by following the family’s Facebook page: Hakuna Matata for Alexander.
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