Register Now for Global Genes’ RARE Patient Advocacy Summit
Registration is now open for Global Genes‘ 2021 RARE Patient Advocacy Summit. This year’s hybrid event will be livestreamed…
Articles by Bionews Staff
31 Days of SMA: I Hope to Make the World More Fabulous Through Art
Photo courtesy of Hanna Eide Day 16 of 31 This is Hanna Eide’s story: My name is Hanna, and…
31 Days of SMA: I Dreamed Big and SMA Became Small
Photo courtesy of Jacob Frost Day 15 of 31 This is Jacob Frost’s story: I have SMA type…
31 Days of SMA: Playing the Game of Life with a Disability
Photo courtesy of Joe Frost Day 14 of 31 This is Joe Frost’s story: Life with a disability is…
31 Days of SMA: Creating Art Has Expanded My World
Photo courtesy of Pia Noi Schmid Day 13 of 31 This is Pia Noi Schmid’s (@pianschmid) story: I’m Pia…
31 Days of SMA: Note to My Younger Self? Don’t Hide Who You Are
Photo courtesy of Tristram Peters Day 12 of 31 This is Tristram Peters’ (@tristrampeters) story: When I was…
NORD Rare Disease Summit, Online Oct. 18-19, Open for Registration
Registration is now open for the 2021 Rare Diseases and Orphan Products Breakthrough Summit, which will be held virtually Oct.
31 Days of SMA: Singing Is My Great Passion and Therapy
Photo courtesy of Beth Whitby Day 11 of 31 This is Beth Whitby’s (@rolling_in_vintage) story: My name is…
31 Days of SMA: The Power of a Positive Physician-Family Dynamic
Photo courtesy of Carolyn Saylor Day 10 of 31 This is Carolyn Saylor’s story: We live in…
31 Days of SMA: Opportunities Opened Up After I Accepted Myself
Photo courtesy of Tandin Dorji Day 9 of 31 This is Tandin Dorji’s story: I moved to the United…