I looked at the faces on my computer screen and saw just a snippet of the SMA community.
Kevin Schaefer
Kevin Schaefer (he/him) is a writer, podcaster, and lover of all things pop culture. Diagnosed with SMA type 2 at the age of 18 months in 1995, he shares a vast array of hilarious and eye-opening stories from his life with a neuromuscular disability. He works as the associate director of community content for this site’s parent company, BioNews. He also hosts the SMA News Today Podcast. Kevin is a graduate of North Carolina State University and lives with his parents in Cary, NC. People regularly mistake him for Tony Stark, on account of his intellect and advanced technological equipment.
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Articles by Kevin Schaefer
Well, 2021 has arrived, but we are still dealing with the ongoing ramifications of the previous catastrophe of…
The pursuit of independence is almost always on my mind. As a disabled person, I face numerous challenges…
I didn’t plan on spending the majority of the day after Christmas on the toilet with a sharp…
Christmas Eve marks four years since I became an uncle, or as I like to call myself, a…
Boy Meets Wonder
The ABC sitcom “Boy Meets World” was a staple of my childhood. My…
In his essay for The New Yorker, “Who Am I?…
If 2020 were a movie, it would have the aesthetic of David Lynch and the shocking twists and…
It’s Been an SMA Kind of Day
Certain days can only be described as “an SMA kind of day.” It happens when…
Do you sleep in your wheelchair? This is a question I used to…