One of the consequences of having SMA is scoliosis. The increasing curvature of the…
Articles by Michael Casten
Spreading awareness about SMA has been one of our goals since we first were…
Ella again had a Spinraza (nusinersen) injection last week. As per the regular…
Fall slips away softly as the brilliant colors of fallen leaves let go of…
Cold winds are beginning to blow the leaves off of the trees. A circus…
Over the years, we’ve trained a few people on how to care for Ella.
Kids and adults alike love to ride bikes. Exercise, travel and autonomy sprout from…
The trip to downtown Chicago takes but an hour for us, as we make…
The middle child holds a special place in everybody’s heart — they’re the peacekeeper, the…
Ella’s a hard-working 7-year-old. She rises early in the morning for school. While at…