Taking a Deep Breath
One of the consequences of having SMA is scoliosis. The increasing curvature of the…
Articles by Michael Casten
Spreading the Word
Spreading awareness about SMA has been one of our goals since we first were…
Bright and Positive
Ella again had a Spinraza (nusinersen) injection last week. As per the regular…
The Spirit of Play
Fall slips away softly as the brilliant colors of fallen leaves let go of…
Coat Weather: To Zip or Not to Zip
Cold winds are beginning to blow the leaves off of the trees. A circus…
Ella Helping Ella
Over the years, we’ve trained a few people on how to care for Ella.
The Simple Joy of Riding a Bike
Kids and adults alike love to ride bikes. Exercise, travel and autonomy sprout from…
Strength in Time
The trip to downtown Chicago takes but an hour for us, as we make…
The Middle Child
The middle child holds a special place in everybody’s heart — they’re the peacekeeper, the…
Always Work to Be Done
Ella’s a hard-working 7-year-old. She rises early in the morning for school. While at…