SMA Family Raising Money for a Wheelchair-Friendly Minivan
Zyah Goss-Pittman from Jefferson, Georgia, is a fun-loving, spunky seven-year-old who is proving doctors wrong whenever she can. Diagnosed at…
Articles by Wendy Henderson
Technology Helps Young Girl With SMA Experience Preschool From Home
Three-year-old Addilynne Shirey from Lakewood, Ohio loves preschool but has to be extra careful during the winter months to not…
Eurovision Entrant With SMA Caught up in Political Controversy
The European song contest Eurovision has been a much-loved tradition in Europe since 1951 and is watched by more…
The SMA Trust Shares Four Patients’ Stories
The SMA Trust has released a series of SMA stories that highlight the journey some young patients with spinal…
Cure SMA Launches Booklet of Insurance Advice
Often one of the most frustrating things about dealing with a chronic illness is trying to decipher health insurance and…
How a Cough Assist Machine Works
Children with spinal muscular atrophy (SMA) may experience problems with breathing and clearing their lungs of mucus. In these instances,…
11 Fast Facts About Spinal Muscular Atrophy
How much do you know about spinal muscular atrophy (SMA)? It’s a genetic disease that progressively weakens the muscles of babies and…
Families in Northern Ireland Win Right to Spinraza Treatment
Last week we reported that three families in Northern Ireland were fighting for their children to receive the new SMA drug…
Canadian SMA Families Waiting for Spinraza Approval
This video from CTV News features the Bartlett family from Ontario, Canada. Sarah and Myles Bartlett are understandably excited…
SMA Families in Northern Ireland Fighting for Nusinersen (Spinraza)
There are just four families in Northern Ireland who are affected by spinal muscular atrophy (SMA), three children have type…