Explaining the Role of SMN Genes in SMA
Spinal muscular atrophy (SMA) is a genetic neurogenerative disease which affects approximately one in every 6,000 to 10,000 children. It is caused…
Articles by Wendy Henderson
5 Ways Cure SMA Offers Help to Newly Diagnosed SMA Families
Cure SMA is a non-profit organization committed to helping patients and the family of people with spinal muscular atrophy…
Australian Baby Becomes Ninth SMA Patient to Receive Nursinersen
Aviana McElwee from Darwin, Australia, was just a few months old when her doctor realized she was having problems reaching milestones.
Cure SMA Launches Survey About SMA Treatment
The non-profit organization, Cure SMA, is launching an international patient survey so that it can address some of the issues…
Child With SMA Dismissed as ‘Lazy Baby’ Now Thriving on Spinraza
According to the Daily Mail, Lexi Pacini from Colorado has made incredible progress while using Spinraza. Lexi’s parents felt something was amiss with…
Study of Mothers With SMA Shows Positive Pregnancy and Delivery Experiences
A recent study group has interviewed mothers with SMA to establish if they had any problems with pregnancy and the…
How Cough-Assist Machines Help With SMA
In this Fight SMA video, Dr. Nanci Yuan talks about the role of cough-assist machines in the treatment of children with spinal…
7 Support Care Areas That Can Help Patients With SMA
Patients with spinal muscular atrophy (SMA) will need support care in various different areas, from healthcare to daily life. To…
Spinraza Clinical Trial Update: Boy With Type 1 SMA Progressing Well
This video from Nemours Children’s Hospital shows the effects of the drug nusinersen (Spinraza) on a young spinal muscular…
Understanding Finkle Type Spinal Muscular Atrophy
Finkle type spinal muscular atrophy is a form of SMA that develops in adulthood as opposed to childhood. Dr. Richard Finkle…