What to Know About Scoliosis and Spinal Muscular Atrophy
Scoliosis is a common complication in children with spinal muscular atrophy (SMA). Scoliosis is characterized by a curvature of…
Articles by Wendy Henderson
Couple Uses Daughter’s Plight to Raise Awareness of SMA Screening
An Australian couple is still reeling from the devastating news that their 12-week-old daughter has spinal muscular atrophy (SMA) type…
Why Physical Activity Is Important When You Have SMA
According to the Muscular Dystrophy Association, people living with spinal muscular atrophy (SMA) should try to…
Teen With SMA Hopes Spinraza Will Get Him Back on His Feet
Sixteen-year-old Royce Jones from Indianapolis was diagnosed with spinal muscular atrophy (SMA) type 3 at 18 months old. However, Royce has…
The Effectiveness of Nusinersen and AVXS-101
https://www.youtube.com/watch?v=aKuUzfZCnyE In this video from Neurology Today, Dr. Brent Fogel, an associate professor of neurology and…
SMA: What Kind of Physical Therapist Do I Need?
If your child has spinal muscular atrophy (SMA), then it’s likely that their care will come from different areas of…
9-Year-Old Boy From Indiana Starts Spinraza Treatment
Alexander Davis is a nine-year-old boy from Tipton, Indiana who is embarking on a new journey in his treatment for…
Detecting SMA With Carrier Screening
The decision to screen for genetic diseases like spinal muscular atrophy or cystic fibrosis is very personal.
Growing Up With SMA: Maija’s Story
This video from Attitude is all about 10-year-old Maija Fredrichberg from New Zealand. Maija describes herself as “a…
Talking to Family Members About Your Child’s Neuromuscular Disorder
A neuromuscular disorder diagnosis will have a profound effect on the whole family. Younger siblings often don’t fully understand what…