Why Is RUSP Newborn Screening So Important?
The SMA community is buzzing with the news that spinal muscular atrophy has been nominated to be included on the…
Articles by Wendy Henderson
4 Things to Consider Before Getting a Service Dog
Having a service dog can greatly enhance the life of someone living with a chronic disease. They allow patients to regain some…
Introducing Our Fantastic ‘SMA News Today’ Columnists
Here at SMA News Today, we try to bring all the latest research and treatment news to our readers, but…
Inspirational Adults With SMA: Hayleigh Barclay
This video from Muscular Dystrophy UK is all about Hayleigh Barclay. Hayleigh is a 27-year-old woman…
How to Live Your Best Life With a Chronic Illness
https://www.youtube.com/watch?v=rCZunn4ML5o If you’re living with a chronic illness, it’s easy to slip into a malaise and feel sorry for yourself.
What to Expect: Healthcare for SMA Patients
Caring for an infant with spinal muscular atrophy (SMA) will be overseen by many different healthcare professionals who will work together to…
Share Your Blessings Donates $300K Worth of Beamz Music Systems
Share Your Blessings is a non-profit organization that specializes in helping children and adults with special…
Preparing for Trips Outside the Home When You Have Children With SMA
Leaving the home when you have children with SMA can be challenging. There are many factors to take into consideration…
Spinraza Recommended for Approval in Europe
The new spinal muscular atrophy (SMA) treatment Spinraza has been recommended for European approval by the Committee for Medicinal Products…
‘Dare to Be Remarkable’: A Documentary About Life With SMA
This video from therhodeshow is all about Alyssa Silva, the star of a documentary about life with…