I’ve long dreamed of visiting the Georgia Aquarium in Atlanta to see their famed whale sharks. Something about the gigantic yet peaceful sea creatures tugs at my soul in a way that made me crave seeing them up close. Eventually, that dream became a reality as well as…
Columns
I was born on an Air Force base in Tacoma, Washington, but I grew up in Fort Worth, Texas. Texas was a wonderful place despite the chiggers, mosquitoes, and traffic. It was also oppressively hot in the summer, when only ice-cold watermelon, iced tea, ice cream, and Mexican food sounded…
“What are we making for dinner today?” my friend asks as we head to my kitchen. I love when she says “we,” because she knows I like to be an active participant in this process. It isn’t just her making something for me; it’s both of us making something together.
“Time for your whirlwind 20s, babe!” When my best friend and fellow SMA News Today columnist, Brianna Albers, said that a month ago, I couldn’t have imagined how much I would feel her words. She’d said it in the context of me wanting to meet some (admittedly questionable)…
As much as I love to read, sometimes the physical act of doing so isn’t easy. Books quiet my mind. They transport me to another world where hospitals and doctors’ offices aren’t the norm. However, my hands and fingers don’t always cooperate when I want to read. Something as simple…
What comes to mind when you think of Labor Day? For some people, it might mean a cookout, a day trip to the lake, or a last, desperate dip in the swimming pool. For me, it conjures up memories of hairspray, big puffy dresses, multiple ringing telephones, video cameras, and…
As a high school senior, I belonged to our school’s coed spirit group. I belted out the cheers at the football games enthusiastically, although my pigskin smarts fit on the head of a pin. An astute observer, I quickly identified “first and 10” as a good thing because of the…
My parents came to visit me last weekend. For the past three years, I’ve been living on my own, 600 miles away from them. I love my home and my community, and I know that for now, I’m where I’m supposed to be. But there are times when I miss…
Now that a new school year is ramping up, my mom’s volunteer day care service for my niece, Lily, and nephew, Lucas, is back in full swing. My sister, an elementary school teacher, had all-day meetings this week, and school doesn’t start until next week. As such, our house has…
I prefer to write columns after everything is said and done. It’s why I didn’t tell you all about my dad’s cancer until I knew he was going to be OK. I write stories for a living, so I guess it makes sense that I’m drawn to narratives with…
Recent Posts
- The logistics of hugging a friend with SMA
- Problems with swallowing seen for SMA children despite early treatment
- The woes of adding a new ingredient to my medicine cocktail
- Genentech stops emugrobart program for SMA after clinical trial results
- 17-year-old advocate shares her NMOSD story to raise awareness
