Dragons, elves, magic, and a deaf female general are just a few of the things you’ll find in Netflix’s “The Dragon Prince.” The new animated fantasy series from the head writer of “Avatar: The Last Airbender” has already garnered many positive responses from critics…
It seems like everyone I know is getting married. People I went to high school with are updating their relationship status on Facebook to “engaged.” They change their last name and so the first few times they pop up on my news feed, it takes me…
Last week, I wrote about the harsh reality that sometimes is SMA. I retold the story of my attempt to drive through the mountains of New Hampshire and how after breaking down at a gas station, I realized my body had other plans. I explored the…
Siblings. Ella has two of them, both older: Ava (11) and Henry (9). They face all of the typical adventures that kids their age face such as school, friends, and screens. But one thing they have to work with that eludes their peers is having a…
“Normal” isn’t exactly a word that describes anyone with SMA. We do things differently than most people, have different challenges, and live unabashedly abnormal lives. (Just look at my diarrhea and disability column from last week.) Nevertheless, there is no reason why those of us…
I was nervous about “Hamilton.” For one thing, I’d listened to the original cast recording so many times I was worried I wouldn’t be able to enjoy the touring version. For another, I wouldn’t have my parents around if something went wrong.
Crying at a random gas station in rural New Hampshire was on my long list of things I thought I’d never do. Yet, there I was, two hours away from home, coming undone and growing angrier than ever at a disease that was beyond my control. I’ve been…
In my last column, “Meticulous or Ridiculous?”, I mentioned that I was traveling to Eugene for the Oregon football home opener. It’s a trip I’m used to because I’ve made it seven years in a row. What I didn’t mention was that I was also going to…
A loud horn. Headlights and backlights. Hazard lights. Turn signals. Tilt features. Ella’s new wheelchair has arrived! We’ve been waiting for her new chair for one to two months now — and it’s finally here. It goes faster than her old chair…
Yep, I’m going there. If you’re easily turned off by poop jokes, just skip this column. SMA is tough, but diarrhea causes me pain and discomfort unlike anything else. When my body experiences this ungodly phenomenon, I want nothing more than to be…
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