With a brisk chill in the air and an impending snowstorm near, I’m reminded that it’s officially the time of year when people start asking me, “Where’s your coat?” It’s a valid concern on their part, I suppose. After all, when the weather drops below freezing, the right thing to…
If you asked me to describe the metaphorical status of games journalism this year, I’d say we’ve descended into carnage. Is that melodramatic? Perhaps. But journalism is a competitive field. When it’s subject to publications and departments closing, mass layoffs, and budget cuts, as it was this year, journalists struggle…
My brother and sister-in-law recently took my nephews to see “Paw Patrol Live!” when the show came to our area. Anyone who has kids under the age of 5 is likely familiar with the popular animated series about a canine police force. The live show brings these characters…
If you’ve never shivered at the sound of someone coughing, chances are you’ve never experienced the weight of a respiratory infection. For someone living with SMA, that’s not usually the case. Getting these infections can be dangerous and life-threatening for us, even if they’re simply common colds. In…
So much of who we are is influenced by our family members. I’m not saying that we have to be exactly like them, and we certainly should do whatever we can to not copy bad behavior. Yet the honorable qualities we see in those close to us have a way…
I don’t know what it is about the end of daylight saving time that rustles my brain when the sun goes down. Maybe it’s because we think of secretive things emerging at night, and now it gets dark at 5:30. As time backed up this month, my “barn doors…
In the 1989 comedy film “See No Evil, Hear No Evil,” the protagonists redefine the phrase “unlikely heroes.” Wally (Richard Pryor) is blind, Dave (Gene Wilder) is deaf, and both are professionals at getting into trouble. When they find themselves at a murder scene and get framed for…
Some people live for cold weather. They hate the heat, for some strange, inexplicable reason, and live for the day when they can pull out their chunky knit sweaters and thick, fuzzy socks. I am not one of those people. Aesthetically, I love the colder months. I love candles and…
Throughout my life, the doctors, nurses, and other medical personnel who have cared for me have filled out a collective mountain of paperwork. I’m willing to bet that far more of my days have been documented than not. Most charting is electronic now, but there are certainly boxes full of…
Contrary to what others may perceive, living with spinal muscular atrophy (SMA) doesn’t come with an instruction manual. Trust me, though, there are many days I wish it did. A common question I’ve been asked throughout my lifetime is how I manage the daily nuances of my life…
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