Columns

Why I no longer make New Year’s resolutions

This may be an unpopular opinion, but I don’t buy into the hype of New Year’s resolutions anymore. For years, I would set goals and articulate my intentions. I made vision boards. I followed the traditions that come at the start of each new year. However, with introspection and…

SMA, Beckwith-Wiedemann syndrome, and a happy ending

The first surprise our third baby, Jeffrey, delivered was his mere appearance. In 1997, my husband, Randy, and I juggled two school-age children and their respective activities, his new job, and a bustling family lodge. A baby was nowhere on the to-do list. Surprise No. 2 was Jeffrey’s arrival two…

Can joy and grief coexist? They certainly do during the holidays

The film “Everything Everywhere All at Once” features parallel universes, sprawling action sequences, and images involving hot dogs that viewers will never forget. It’s a highly cinematic, cross-genre epic. But at its core, it’s a movie about family and relationships. The film’s two central characters are a mother…

Reflecting on the SMA treatment decision that changed my life

This column describes the author’s own experiences with Spinraza (nusinersen). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. When trying to decide on a topic for this week’s column, my procrastination got the best of me, as it usually…

How my life moved forward across a rich and eventful 2023

Secretly, I usually dread this time of year. To borrow from singer-songwriter Sara Bareilles, December is, to me, a “problem child.” It’s not easy to exist inside of this contradictory month, a time of both celebration and solemnity, of looking backward and forward. My birthday and…

A look back at 2023, a year of contraction

On a Sunday morning in mid-November, I opened my email to a newsletter from one of my favorite writers, Catherine Andrews. In it, she named the past 15 years of her life as being particularly contractive. She struggled with everything, from her relationship with alcohol to dating and creativity.