Columns

Defying Monotony in Life With SMA

“Hello, Peter. What’s happening? Umm, I’m gonna need you to go ahead and come in tomorrow. So, if you could be here around 9 that would be great. Mmkay? Oh, oh, and I almost forgot, ahh, I’m also gonna need you to go ahead and come in on Sunday, too,…

A Year Later, I’m Still Wearing Old Shoes

Last January, I wrote about shoes. At the time, I was gearing up to get a new wheelchair. Those who are familiar with wheelchairs will recognize this process for what it is: absolute agony. From seating to driving to minuscule issues that you can’t pinpoint for the life of…

The Enemy Is Urgency

In 2019, something wonderful happened. I got bit by the tattoo bug. If you’ve followed my column for a while, you’ll know my first tattoo was a big deal. First, it was finding an artist I vibed with. Then it was finding an accessible parlor — no mean…

Special People Enter Our Lives at Unexpected Moments

We all experience moments that change our destiny. For me, it might have been learning whether I had passed a major college exam. For others, it might be the moment their partner responds to a marriage proposal. We often anticipate this type of life-changing moment. But what about unexpected moments?…

Eyes Opened and Eyes Closed

I spent a school year substituting in various special education classrooms in Fort Worth, Texas, before returning to school for teacher certification. I’d already worked with young children with developmental disabilities and loved their (usually) carefree and good-natured dispositions. My first assignment as a substitute teacher at…

A Power Outage and a Frozen Ramp

Here in North Carolina, the weather fluctuates between springtime warmth on Christmas Day to freeze-your-butt-off cold a couple days later. We sometimes get all four seasons in the span of a few weeks, but it’s the wintertime that requires the most preparation. It forces people…

Even in the Midst of COVID-19, We Must Own Our Time

As I write this, my room glows in the midafternoon sun. Sometime last year, I invested in a suncatcher, so there are rainbows everywhere — pastel sunbursts that are there, then gone. It’s unseasonably warm in Minnesota today, so the snow is melting, dripping steadily off the roof. According to…