Columns

For Better, for Worse, and Everything in Between

June 7 was my 46th wedding anniversary. My parents reached their 50th anniversary 17 years ago. It is mind-boggling that my husband, Randy, and I are already old enough to ponder our own golden celebration. I have mentioned Randy in almost every column, if not all of them.

Technology Will Help Ella Live Independently

Technology is a big part of our lives these days. It helps us with learning, shopping, and communicating, among other facets. Kids today rely on technology for many of their needs. But what about kids with spinal muscular atrophy (SMA)? How do they fare in this…

Lean on Me — Literally

“I can’t carry it for you, but I can carry you!” Samwise Gamgee shouts in “The Lord of the Rings,” as he carries Frodo up Mount Doom to destroy the ring of power. It’s an iconic tear-jerker movie moment,…

Disability Advocacy Must Include the Black Perspective

I love the disability community. I love our resilience, our creativity, and our willingness to adapt and change. We have visions of an inclusive world that celebrates diversity and supports marginalized people in their pursuit of fulfillment and vitality. To celebrate disability, we must acknowledge the…

Waiting for Fireflies

Dusk was settling in. The sun had clocked out for the day, and as it traveled farther and farther away toward its sleeping quarters, the moonlight grew radiant in the stillness of the evening.  I stared intently at the tall grass of the tree line. I waited patiently for…

Ella Skips a Level in Choir

Ella has always loved to sing. Because she can’t join physical activities or play an instrument, we decided to enroll her in the Young Naperville Singers (YNS) choir. Ella was overjoyed. She finally had something like her brother and sister — who study piano and…

My Own Kind of Digital Detox

Digital detoxes are all the rage these days, and for a good reason. If you didn’t already know, a digital detox is time spent disconnecting from all devices with a screen — smartphones, computers, and television to name a few — for a certain period. Whether…

Jeffrey, Clara, and James: A Love Story

Our son Matthew and daughter-in-law Jill handed me a Mother’s Day card in 2015 with instructions to read it aloud. I didn’t pay attention, however, so my deafening squeals left my husband, Randy, perplexed until I blurted out that we were going to be grandparents. A critical task…