Columns

Ella Works Through Life’s Frustrations

The house is full of wheelchairs, walkers, and crutches. Soon to be added will be a cane. Ella’s mom, Lindsay, had a total left knee replacement. The knee replacement was necessary because she had compensated for her right leg for many years as she battled a nasty infection…

Let 2020 Be the Year of Disability Representation

I just finished watching “The Ataxian,” a documentary from 2015 about Kyle Bryant, a bicyclist living with Friedreich’s ataxia (FA), a rare disease which shares commonalities with SMA. The film showcases a 3,000-mile bike race across the United States completed by Bryant and…

Keeping My Goals and Adapting Them to Suit My Needs

Congratulations! You have completed another rotation around the sun. Now that the holiday celebrations are over and we have resumed our normal daily schedules, let us turn our attention toward a common practice at this time of year: New Year’s resolutions. Many people choose to start a new year by…

The Humorous Interactions That Stay with Me

A few months ago, my colleague Brianna Albers wrote an excellent column about ableism in interactions with strangers. People pity those with disabilities and say things such as, “I’m so sorry for this horrible thing you have to live with.” I’ve…

Preparing for Christmas Celebrations with SMA

It’s not a secret that I’m not a big fan of winter weather. But that doesn’t mean I don’t like a few things about this time of year. Specifically, I love the winter holidays! Christmas has always been my favorite. I love watching my favorite Christmas…

Twinkle, Twinkle, Little Star

I’ve been in awe of spectacular night skies for as long as I can remember. When our family moved to the mountains of North Carolina (close to the stunning Blue Ridge Parkway) at the end of 1995, we realized that we were privy to the magical…