I was wrapping up a week of vacation when I came upon a flood of posts on my Instagram feed about “SMA Pride Month.” Though August is traditionally recognized as SMA Awareness Month, a group of SMA activists and influencers feel it’s important to rebrand the name. By calling it…
Embracing My Inner Alien - a column by Kevin Schaefer
“LET ME KNOW IF YOU NEED ANYTHING!” An usher exclaimed these words at the top of his lungs in the church auditorium while putting his hand on my shoulder. To say this experience was patronizing would be an understatement, but it did provide the catalyst for the perfect rebuttal. Upon…
This year marked the second entirely virtual annual Cure SMA conference. Instead of armies of wheelchair users invading Disneyland and hotels, we fellowshipped through virtual trivia nights and Zoom socials. While I yearn to be back in person with my fellow SMA peeps,…
“It’s a dangerous business, Frodo, going out of your door. … You step into the Road, and if you don’t keep your feet, there is no knowing where you might be swept off to.” By now, my readers and editors are probably rolling their eyes at the absurd number of…
One of my favorite films is “Rushmore,” a coming-of-age comedy from one of cinema’s most imaginative directors, Wes Anderson. “Rushmore” tells the story of quirky teenager Max Fischer, an ambitious playwright who prioritizes everything but his academics. He joins every…
My life is a sitcom. Recently, I was chatting with my friend Young, a columnist for Charcot-Marie-Tooth News, about our writing processes. He was rather amazed when I told him that I rarely plan column topics. In my life, it’s never…
Peter Jackson, the New Zealand filmmaker who spearheaded “The Lord of the Rings” trilogy and the 2005 remake of “King Kong,” is known for being a bit of a maverick. Even after acquiring commercial and critical success for…
My dad and I both heard the perfunctory snap as the right armrest on my power wheelchair lowered. I was about to get ready for bed on a Friday night, and my dad had just transferred me from my bathroom seat to my chair. As he lowered the…
“Chewie, we’re home.” Just as Han Solo uttered these words when he stepped aboard the Millennium Falcon in “The Force Awakens,” I felt a similar tinge of nostalgia and excitement upon returning to my favorite movie theater after an entire year.
On March 18, the gargantuan blockbuster of a superhero movie known as “Zack Snyder’s Justice League” arrived on HBO Max. With its multiple storylines, ensemble of main characters, staggering four-hour run time, and history of controversies and triumphs,…
