A good pair of shoes isn’t just for people who don’t use a wheelchair
The right shoes are a part of how I protect my feet and stay comfortable
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When my caregivers fetch my shoes in the morning and my feet effortlessly slide right into them, more than one of them has smiled confidently and remarked, “Ah, now that’s a sure sign that it’s gonna be a great day!”
And it is true. Despite the complications of having weak toes and ankles because of SMA, I also have a bit of a Cinderella complex. There is something deeply satisfying about a shoe that fits perfectly.
I like to think my cute shoe collection is pretty typical for an average American woman: sandals, sneakers, boots, and dress flats in various colors and fabrics. I wear a size 3 or 4, so you will usually find me shopping in the kids’ department, attempting to find something that doesn’t feature the characters from “Frozen.” I’ve worn some of the same shoes for years, and they’re still in good condition because they don’t wear out just resting on my wheelchair’s foot pedals.
Some people might assume that because I don’t walk or run, comfort and support don’t matter as much, but it is more important than you might think. Because I sit all day, I deal with circulation problems and fluid retention in my feet and ankles, so I am constantly trying to prevent swelling, pressure sores, and other issues.
For me, the right shoes are not just about style; they are a part of how I protect my feet and stay comfortable throughout the day. I’ve talked with many wheelchair users who have found all sorts of ways to manage these challenges, and here are some tips that have worked well for me. If you or someone you care for has similar concerns, you might want to try out some of them, too.
Elevate your feet
Throughout the day, as much as possible, I prop my feet up in front of me. It is not a good idea to try to drive around with my feet out, especially in tight spaces, but my foot pedals have a motor so I can adjust them myself while I am sitting still at my desk, computer, table, or just reclining in my living room to watch TV.
Stay hydrated
Drinking plenty of clear fluids and using the restroom regularly is a good practice for our bodies in general, but I have definitely seen how it helps reduce swelling in my feet and legs.
Compression socks work wonders
I wear medical-grade compression socks overnight, and then take them off in the morning when I get up and get dressed. Maybe it’s because I am a little bit vain and I don’t like the fashion statement they make, but I also think that lying down and resting with them on helps the swelling go down really well. Of course, if I’m going on a long trip and I can’t put my feet up, I wear these socks too!
Foot massages and pedicures
If you have a friend or caregiver who can come over once or twice a week to massage your feet, I highly recommend it. It is good for your body and soul!
I have one caregiver who does an abbreviated pedicure for me once a week after a shower. That regular maintenance really helps my toes and nails stay healthy.
Shoe selection
When it comes to shoes, sometimes it is better to get a size slightly bigger than you think you need. It’s extra helpful if they include zippers or laces that allow the tops to open up pretty wide, so you can easily slide or place your foot in them. The more space you have to wiggle around and get your foot in the right position, the less likely it is that you will experience pain from pinching, squeezing, or rubbing later in the day.
Also, make sure the insoles of your shoes are soft and squishy, and the sides come up a little bit around your heel and ankle to provide some support. A shoe may look cute at the beginning of the day, but without enough support, your ankles can end up rolled outward, sore, and swollen.
Bette Midler is often attributed with the line, “If you give a girl the right footwear, she can rule the world.” I like to think that is true. I happen to have a couple pairs of shoes that make me feel that way, and I hope that you do, too!
Note: SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of SMA News Today or its parent company, Bionews, and are intended to spark discussion about issues pertaining to spinal muscular atrophy.

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