SMA News Forums Forums Our Community 31 Days of SMA 2021 31 Days of SMA – Benefits to Being Proactive

  • 31 Days of SMA – Benefits to Being Proactive

    Posted by deann-r on August 10, 2021 at 2:00 pm

    Reading this story I completely relate to the moment you realize you could do more for if you knew more. Because this family learned that lesson relatively early, it made a difference in their daughter Britt’s wellbeing. Being proactive in her respiratory care led to living beyond expectations. Read the Saylor family story here. What lessons do you wish you had known earlier in life? Are you proactive in your health?

    alyssa-silva replied 2 years, 8 months ago 2 Members · 1 Reply
  • 1 Reply
  • alyssa-silva

    August 11, 2021 at 9:22 am

    I feel this so much, too. I think if I could go back in time, I’d be more proactive about getting physical therapy. I needed in-home care and insurance would never cover it because it was considered “maintenance.” I wish I had fought harder back then to get it.

Log in to reply.