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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

This topic has 2 replies, 3 voices, and was last updated 1 year, 5 months ago by DeAnn R.

  • Author
    • #11845

      There are various forms of SMA that affect different parts of the body and vary in severity. Here’s a list of some of the rarer forms of the disease: Spinal and Bulbar Muscular Atrophy, SMA With Lower Extremity Dominance, SMA With Progressive Myoclonic Epilepsy and X-Linked Infantile SMA.

      Learn more about each type of these forms here: “5 Rare Types of Spinal Muscular Atrophy

      Did you know about all these types? Do you – or someone you know – suffer from any of these?

    • #17452

      And which one is the most dangerous?

      • #17462
        DeAnn R

        Types 0/1 are the most severe types.

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