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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 1 reply, has 2 voices, and was last updated by  DeAnn R 3 months, 1 week ago.

    • Author
      Posts
    • #19341
       Ryan Berhar 
      Keymaster

      Hey everyone, here’s Kala’s newest column.

      SMA Medications Are Awesome, But They’re Not Accessible

      She makes valid points about the inaccessibility of Spinraza and Zolgensma. Still, I want to remind everyone that treatments/cures for SMA are still in their infancy. We’ve reached a breakthrough, and there’s much hope for the future.

    • #19350
       DeAnn R 
      Keymaster

      Unfortunately cost isn’t the only thing that makes them inaccessible. At least Zolgensma is a one time treatment though. As you said Ryan, the future looks bright.

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