• Sponsored Post

    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 1 reply, has 2 voices, and was last updated by  DeAnn R 3 months, 1 week ago.

    • Author
    • #19341
       Ryan Berhar 

      Hey everyone, here’s Kala’s newest column.

      SMA Medications Are Awesome, But They’re Not Accessible

      She makes valid points about the inaccessibility of Spinraza and Zolgensma. Still, I want to remind everyone that treatments/cures for SMA are still in their infancy. We’ve reached a breakthrough, and there’s much hope for the future.

    • #19350
       DeAnn R 

      Unfortunately cost isn’t the only thing that makes them inaccessible. At least Zolgensma is a one time treatment though. As you said Ryan, the future looks bright.

    You must be logged in to reply to this topic.

    ©2019 KLEO Template a premium and multipurpose theme from Seventh Queen


    We're not around right now. But you can send us an email and we'll get back to you, asap.


    Log in with your credentials


    Forgot your details?


    Create Account

    Copyright © 2017-2019 All rights reserved.