Approved for Evrysdi
I was finally approved for Evrysdi! The stupid age limit that had been imposed for the past year in Greece, preventing access to treatment for patients over 25, is finally removed. Of course it’s great news and I’m grateful, but my anxiety is running rampant! I don’t know how my body will react to it as I’ve never taken any form of medication other than antibiotics and plain painkillers. Out of all the possible side effects (GI issues, headaches, restlessness), it’s diarrhea I’m mostly worried about for reasons you’re all familiar with: I don’t have the privilege of going to the toilet whenever I please, even that has to be scheduled when you have SMA.
How have you dealt with these issues? Anything else I need to be prepared for?