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The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.

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    • #24453
      Alyssa Silva

      Hey all. Was curious if there’s any fun or creative ways you’re participating in SMA Awareness Month.

      For example, here at SMA News Today, we’re doing 31 Days of SMA. Are you using your social media platform to educate others? Blogging? Live streaming or YouTubing?

      I plan on posting to Instagram, I just haven’t collected all my thoughts to do so yet. I was also thinking of polling my community and asking them what they want to know? I’m not sure! But I want to make it interactive and informative.

      Would love to hear your thoughts.

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