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Article Regarding Views on Spinraza
Here is a link to an excellent article regarding why individuals are hesitant to start Spinraza. Mainly the concerns are lack of information & data, access barriers and the prospect of future treatments. All valid concerns in my opinion. A decision to seek treatment is a very personal one. For me it was an easy decision. For others the decision is much more difficult. What are your thoughts?
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1 Reply
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I’ve chronicled my Spinraza journey on my column. Basically, after pursuing it for like two years, I finally just couldn’t take it anymore. There were so many setbacks. I just couldn’t put myself through any more. It’s been a few months since I made that decision, and I have no regrets so far. I’m optimistic about future treatment options.
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