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This topic has 1 reply, 2 voices, and was last updated 1 year ago by Alyssa Silva.

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    • #21218
      Michael Morale
      Keymaster

      Hey everyone! Hope you’re all having a great week so far.

      Check out the latest episode of the Morale Monologue here. Recently, Biogen Pharmaceutical’s decided to conduct a study to possibly increase the dosing amounts of Spinraza. This study will look at the effects of increasing the dosing amount for those of us who are receiving this treatment.

      I share my thoughts on this news, and what it could mean for adults receiving Spinraza. Read more about this study here.

      What are your thoughts on this study? Do you have any questions about Spinraza? 

    • #21256
      Alyssa Silva
      Keymaster

      This is interesting and, quite honestly, very necessary to explore! I typically feel a huge decline after week 12 of my injection, so either increasing the dosage or frequency would be beneficial. I’ve heard others with SMA say this as well.

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