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Building your SMA healthcare team
Hello, SMA community!
Hope everyone is having a great summer. It was wonderful seeing so many people at the conference recently, and I’m excited to share several videos about that in the coming weeks.
First, I wanted to highlight this video series we did earlier this year. This one is about building a healthcare team when you have SMA. We interviewed several doctors who are SMA experts, as well as a friend with SMA. If you are struggling to find proper SMA specialists, or just doctors in general, these videos have some great tips and stories on this subject. Check out the full series here.
What’s been your experience building a healthcare team? Do you have any tips for finding the right SMA specialists?
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1 Reply
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Thanks for sharing, Kevin! This is so helpful.
One tip I have is to find doctors who are willing to communicate with one another, as SMA is a complex condition. For example, you may be experiencing low energy, but there could be multiple reasons for it, such as iron deficiency or breathing difficulties. Having a team that works together is important so that they can adjust their care plans accordingly!
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