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The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.


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This topic has 4 replies, 5 voices, and was last updated 1 year, 2 months ago by Ryan Berhar.

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    Posts
    • #19807
      Luis and Jennifer
      Participant

      Luis is needing a new cellphone.  We are weighing our options. Those that are weaker what do you prefer? iPhone or Android? Why?

    • #19808
      Halsey Blocher
      Participant

      I’ve never really used android, but I’m a big iPhone fan! They’re fairly lightweight and the touchscreen is pretty responsive. I’ve also recently learned how to use the assistive touch feature. If you want to know more about that, you should ask Ryan. He’s the one who taught me.

    • #19809
      Adnan Hafizovic
      Participant

      I’m a fan of Android phones. The majority of the phones use android, because the Android OS is high quality. The iPhones are more expensive, but they are not better than other brands. I mainly buy Samsung mobile phones, I’m happy with them.Now I use Samsung S7 . I once had a LG smartphone, it is also good smartphone and it was very lightweight. And Huawei is good, but it should be avoided because of the US-China economic conflict. Sony is also good. At the end, the most expensive are the Iphone, then Samsung.

    • #19810
      Greg Sealey
      Participant

      Either will probably meet the need.  But, I believe iPhone is truly the best solution for anyone needing Assistive controls.  Apple seems to truly have a keen eye on building their products to help the disabled community.  Checkout this video from Apple marketing the upcoming release of iOS and MacOS for their iPhones, iPads, and MacBook computers that will include a feature called VoiceOver.  If you also want seamless integration between you phone and laptop, then Apple products are the best choice, hands down.

       

      Life is Good,
      Greg
      GregSealey.com

    • #19849
      Ryan Berhar
      Member

      Other than Trump’s wall, this is probably America’s most divisive issue. Lol. Seriously though, I’m a big iPhone fan, and I have very weak hands. Features like assistive touch and predictive keyboard are enormously big helps to me. I currently have an iPhone 8, and it’s definitely workable from a weight standpoint, albeit less than ideal. The iPhone SE was my favorite, as it was extremely light. Unfortunately, that one’s a bit old now, and they haven’t made anything as light since.

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