Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”
Hey everyone, hope you all are doing well! I’m glad to have had a long and refreshing weekend, and to have spent some quality time with family and friends for the Easter holiday.
I just wanted to check in on everyone. How is everyone doing? Myself and the other forum moderators want to make this a supportive online community for people who have SMA, and for parents and caregivers. Medical professionals are also welcome here. Please let us know if there are any topics you’d like to discuss, questions you have, etc.
Also, I’d like to welcome our new members! Thanks for joining us! These forums are moderated by myself, DeAnn Runge, and Ryan Berhar. We also have help from Brianna Albers and Michael Morale. All of us have SMA, and we work for this website’s parent company, which is called BioNews Services (http://www.bionewsservices.com). We are here to serve rare disease and disability communities. Though we do not provide any kind of medical services, we do provide information and support for the SMA community. If you haven’t already, please visit our main website at http://www.smanewstoday.com. We produce a wide range of written and multimedia content every day.
Thanks again for being a part of this community, and I hope you all have a fantastic week.
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FDA Approves ZOLGENSMA for SMA! Talk about it now — click below:
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