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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 2 voices, and was last updated 12 months ago by Halsey Blocher.

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    • #20168
      Brianna Albers
      Keymaster

      Hi everyone! Hope you all had a great weekend!

      As you may have noticed, Alyssa skipped last week’s column. In this week’s column, she explains that. If it’d been up to her, she wouldn’t have, but to her frustration, her body made the choice for her. She worked herself to the brink to make sure her nonprofit’s annual fundraiser gala went smoothly, and once it was all said and done, she had to honor her own exhaustion and stick to her boundaries.

      This is something I’ve always struggled with. I get frustrated with my body and often push myself too far. I can’t know for sure, but I have a feeling that tendency contributed to the tension headaches I experienced last year. They’ve gotten better as I’ve learned to honor what my body is telling me. When I choose not to, I struggle to accept the aftermath, which is usually more headaches.

      Can you relate? Are there certain ways you honor your body?

    • #20205
      Halsey Blocher
      Participant

      I had to request time off recently because my body demanded it. About two weeks ago I got very sick at the exact same time I had planned to write a column. I was hoping to write it anyway but my body gave me no choice but to sleep. As much as I didn’t like it, my body’s needs had to come first, and I’m grateful to work for a company that understands that!

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