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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

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        Brianna Albers
        Keymaster

        Hi everyone! Hope you all had a great weekend.

        In her latest column, Alyssa recounts a recent getaway and all the planning that went into the trip. For her fellow bridesmaids, it was as easy as throwing together a weekend bag. Alyssa, however, had to bring all her medical equipment, as well as medications and extra clothes in case of emergencies. She says, “There’s an unwritten rule that when you don’t pack these nonessentials, your machines will undoubtedly not work.”

        This is something I can really relate with. My parents and I have packing down to a science, especially when it’s a weekend getaway to our place in Wisconsin, but it’s still a drag, having to pack so much stuff for such a short amount of time. I often wish I could go on a spontaneous trip and not pack much of anything, but as we all know, SMA has its own ideas.

        How do you approach traveling?

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