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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 1 reply, 2 voices, and was last updated 5 months, 1 week ago by Halsey Blocher.

    • Author
      • #19548
        DeAnn R

        Happy Wednesday everyone! I just wanted to share Katie’s latest column here.

        On the heels of the latest FDA approved treatment Zolgensma, Katie decided to reflect on her own childhood. While her Mom expressed sadness that there wasn’t a treatment for her daughter, Katie felt the need to thank her parents for shaping her into the person she is today.

        I can relate to a lot of her feelings, even when she credits video games for her stellar driving skills. Although in my case, I credit Atari, not Nintendo.

        Can you relate? What takeaways do you have from this column?

        Days That End in ‘Why’: A Letter to My Parents

      • #19561
        Halsey Blocher

        I love this! Parents are truely a blessing!

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