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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 1 reply, has 2 voices, and was last updated by  Halsey Blocher 1 month, 3 weeks ago.

    • Author
    • #19548
       DeAnn R 

      Happy Wednesday everyone! I just wanted to share Katie’s latest column here.

      On the heels of the latest FDA approved treatment Zolgensma, Katie decided to reflect on her own childhood. While her Mom expressed sadness that there wasn’t a treatment for her daughter, Katie felt the need to thank her parents for shaping her into the person she is today.

      I can relate to a lot of her feelings, even when she credits video games for her stellar driving skills. Although in my case, I credit Atari, not Nintendo.

      Can you relate? What takeaways do you have from this column?

      Days That End in ‘Why’: A Letter to My Parents

    • #19561
       Halsey Blocher 

      I love this! Parents are truely a blessing!

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