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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic contains 1 reply, has 2 voices, and was last updated by  Ryan Berhar 3 weeks ago.

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    • #21011
       Brianna Albers 
      Keymaster

      Happy Monday! In her latest column, Alyssa discusses her family’s “sick rules.” Whenever one of her family members is sick, they’re quarantined for seven to 10 days. It’s harsh, but everyone agrees that it’s the best way to beat the germs.

      Things got complicated when both of Alyssa’s parents were out for the count. Her mom was sick and her dad was unable to help out with Alyssa’s care because of an upcoming operation. There was no choice but to violate their sick rules. Fortunately, they made it through the craziness. 

      SMA can complicate even the most mundane things like a cold. What do you do when your primary caregivers are down for the count?

    • #21025
       Ryan Berhar 
      Keymaster

      Yeah, we take great precautions to keep me from getting sick, but sometimes they aren’t an option. You gotta do what you gotta do.

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