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    • #28726

      Happy Tuesday! Sherry’s latest column is maybe one of my favorite ones she’s ever written. Singapore has yet to approve Evrysdi (risdiplam), so Sherry wrote about the effect the potentially lifesaving medication could have on her wellbeing.

      If you feel so inclined, please share the column on social media — we’re trying to get as many people talking about it as possible!

    • #28741
      Lupa F
      Participant

      The one thing I worry about with the way she talks about Evrysdi is that it seems like she thinks it might be a miracle cure that’ll stop many of her current problems. But Evrysdi and Spinraza don’t work well or at all for a number of patients and I think it’s especially true for people with very severe SMA.

      Also, as shown in the Spinraza article posted her a little bit ago, there’s no justification for the cost of either of these drugs so it’s hard to fault places for choosing to not pay the extortionist prices placed on them by their companies.

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