SMA News Forums Forums Treatments and Research Evrysdi (risdiplam) Columnist Writes About Needing Evrysdi

  • lupa-f

    December 15, 2021 at 8:42 am

    The one thing I worry about with the way she talks about Evrysdi is that it seems like she thinks it might be a miracle cure that’ll stop many of her current problems. But Evrysdi and Spinraza don’t work well or at all for a number of patients and I think it’s especially true for people with very severe SMA.

    Also, as shown in the Spinraza article posted her a little bit ago, there’s no justification for the cost of either of these drugs so it’s hard to fault places for choosing to not pay the extortionist prices placed on them by their companies.

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