A father’s perspective: Our journey to finding a treatment
When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.
Hey everyone! Hope you’re all having a great week so far.
Check out my latest column here. It’s been a roller coaster of a summer for me, and I just kind of wrote out some of my reflections. Life with SMA always throws something crazy at me, but I embrace a mantra of “keep rolling on.”
Do you have any takeaways from this column? Can you relate?
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FDA Approves ZOLGENSMA for SMA! Talk about it now — click below:
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