SMA News Forums Forums Awareness and Advocacy Raising Awareness of SMA Columnist Writes About SMA Awareness Month

  • alyssa-silva

    August 25, 2020 at 9:13 am

    I can see where you’re coming from. Like, if people truly wanted to know about my disease they could google it. It’s not my obligation to tell them. At the same time, I don’t mind when people ask. I also don’t feel pressured to post during SMA Awareness Month. I think my online platform, in general, indirectly raises awareness for SMA every day of the year. While I’m not necessarily educating people, I’m giving them a glimpse at my day-to-day and sharing stories which, ultimately, have SMA has its common theme. I’m just not directly sharing factual information.

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