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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.

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    • #22966
      Brianna Albers

      Hi everyone! Hope you’re all staying safe and sane. What a wild thing to live through.

      I know many of us rely on caregivers and are probably struggling in their absence. I’m lucky in that my dad is able to stay home and take care of me, but it’s still been a difficult adjustment. I’m used to caregivers who are getting paid by the hour to do what I say — and now I have to negotiate and barter with my parents just to maintain some semblance of my normal routine!

      How do you guys cope without caregivers? Any tips for people who are suddenly stuck with their parents?

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