Do you have a PAL?
My PAL (Patient Access Liaison maybe is what it stands for,) left me a voicemail the other day. When I started with Evrysdi the pharmaceutical company provided the opportunity to work with this person as a contact to help streamline the process and answer any questions. Spinraza has them too I believe but they use a different acronym. The message indicates the initial consent I gave is expiring.
Since this person has been of no benefit to me, I’m considering not renewing my consent. On the one hand, they may be a helpful resource to have in my back pocket. On the other hand, sometimes having fewer cooks in the kitchen is a better approach.
Do you have a PAL or treatment contact? Have you found them to be helpful?
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