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    Celebrating “Inchstones” in SMA

    A mother’s perspective: How our family measures progress since treatment

    You couldn’t picture a happier or more beautiful little boy than the one who came into our lives on January 4, 2019. Little did we know, this bundle of joy we named Slade was just starting a journey that was going to change our family’s life.

    About 2 weeks after Slade was born we started to notice that he appeared to be a bit floppy. Our pediatrician chalked it up to him being a calm baby and told us he’d eventually grow out of it. With my husband being a chiropractor and my background in early childhood development, we knew something was wrong–we could just feel it.

  • This topic has 2 replies, 3 voices, and was last updated 10 months, 3 weeks ago by Ryan Berhar.

    • Author
      • #18268
        Kevin Schaefer

        Happy Thursday everyone! Hope you’re all doing well.

        Here’s Michael’s latest column: https://smanewstoday.com/2019/04/10/sma-aqua-physical-therapy-new-therapist/. I’ve been fortunate to be at the same clinic for physical therapy that I started going to a few years ago, and it’s nice to have that consistency. I’ve worked with a few different therapists, but the environment has been the same.

        For those of you who do physical therapy (or you have a child who does), do you have the same therapist? Have you ever used multiple clinics?

      • #18279
        DeAnn R

        Every therapist I’ve ever had does things differently, so I can see where it could be beneficial to change it up now & then. I do like consistency though, so I usually stick with the same one.

      • #18300
        Ryan Berhar

        I’ve done PT off and on throughout the years at two clinics, and I’ve had a bunch of therapists. While I preferred some over others for personality reasons, there was only one who didn’t work.

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