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  • Embracing My Voice as an Individual With SMA

    Posted by kevin-schaefer on February 5, 2020 at 7:00 am

    Hey everyone! Hope you’re all having a great week so far.

    Check out my latest column here. I wrote about the different ways that I use my voice, both in terms of my patient advocacy work and my creative outlets. Especially since I started Spinraza, my voice has become even stronger. Currently I’m looking into doing voiceover work, and seeing what other opportunities are out there.

    Does anyone here do any kind of voice or audio work? For those of you who are on Spinraza, have you noticed any changes in your voice levels/abilities since starting the treatment?

    alyssa-silva replied 4 years, 4 months ago 2 Members · 1 Reply
  • 1 Reply
  • alyssa-silva

    February 5, 2020 at 3:34 pm

    Great column Kevin! My voice has improved since taking Spinraza— like tremendously. Not only can I speak louder and more clearly, but I can also speak for longer periods of time. That being said, I’m not a huge fan of the sound of my voice, so I don’t think I’ll be doing any voice or audio work anytime soon. 😂

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