I read it ,well it is big pain for parents when get that news ,his child has very tough illness.I have SMA and when I hear that my nephew has SMA it was to big like someone stab me in heart.Of course we must live with that and try to live without too much thinking about bad side of SMA.Sincerly one thing is little funny to me in this columne <span id=”result_box” class=”short_text” lang=”en”><span class=””>I’ll quote</span></span>:<span class=”s1″> At one point, one of the adults said that if he had the opportunity to live his life without SMA, that he wouldn’t take it.I’ll just say about that,if I had opportunity I would live without SMA.</span>