Evrysdi and immune system

This topic has 4 replies, 3 voices, and was last updated 3 months, 1 week ago by Davida.

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- January 24, 2021 at 5:35 pm #25833
  
  Davida
  Participant
  
  Hi I was wondering if anyone has had any issues with getting colds while talking Evrysdi? i’m thinking of starting it and was just inquiry if anyone knew if it suppresses your immune system? Thanks
- January 24, 2021 at 6:29 pm #25834
  
  Kelly Miller
  Participant
  
  I’m taking it, and that was not one of the things they said to be careful of. I would think there’d be all kinds of precautions if that were true. Look on the Evrysdi website by Genentech. Everything that’s on there is exactly what they tell us when we start taking it. The common adult side-effects are fever, diarrhea, and rash. I haven’t had any diarrhea, but I have had nausea.
- January 24, 2021 at 6:37 pm #25835
  
  Kelly Miller
  Participant
  
  The website does say that respiratory infections and lung infections, along with sniffling and colds, can be caused in infants. But as with all effects, it depends on the individual.
- January 25, 2021 at 9:58 am #25840
  
  DeAnn R
  Keymaster
  
  I’ve been on Evrysdi for about a month now and haven’t had issues like that. Initially when I started Spinraza I caught a cold right off the bat. Can’t say if it was medication related. At the time I felt the boost Spinraza gave me helped me fight it off easier. As Kelly said I think it’s really an individual thing.
- January 28, 2021 at 2:57 pm #25874
  
  Davida
  Participant
  
  Hi just wanted to say thanks for the input.
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