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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


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      Alyssa Silva
      Keymaster

      In a recent column by Michael Casten, he discussed how his daughter used to feel sad that she couldn’t participate in different sports and play musical instruments like her siblings did. Fortunately, they soon discovered that Ella loved to sing and signed her up to join a choir. She enjoys it so much that she even hopes to perform on America’s Got Talent one day!

      I remember being Ella’s age and expressing similar sentiments. It was challenging to see other kids do activities that I couldn’t but wanted to do. Eventually, I discovered my place. I participated in Special Olympics, was in an adaptive soccer league, and— my favorite— joined an after-school craft club.

      What sort of extracurricular activities are your children involved in?

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