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FAM – Family Access Managers
Recently I put up a poll on a Spinraza social media group I’m in. It asked individuals if they have a FAM or not. For those of you who don’t know that stands for Family Access Manager. Basically they’re a representative from Biogen to help make sure the process goes smoothly. When the doctor prescribes Spinraza you can fill out a Start Form and you’ll be assigned a FAM. Surprisingly after a posting for a day 115 people say they have a FAM while 4 (including myself) do not. I chose not to pursue a FAM as I prefer to have fewer cooks in the kitchen sort of speak. Recently however, I posted about my frustrations on changes my hospital is making to the process, you can read about it here. It’s making me wonder if I should seek a FAM, they may be a good support team member. Many who took my poll stated how beneficial they’ve been. Some seem indifferent. What have your experiences been?
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